PRSB Newsletter April/May Edition 2018


PRSB Newsletter -  April/May edition 2018

PRSB launches new project to improve information sharing in urgent care

The PRSB has started work on a new project to improve information flows between urgent care services to ensure the right data is available in different urgent care settings to support good patient care.  
The work will analyse how information is shared within the NHS 111 Clinical Assessment Service (where doctors, nurses and other healthcare professionals review patient requests for clinical advice) as well as transfers of information that support referrals into services, discharges and other uses of information such as for research, audit and planning purposes. Clinical records in integrated urgent care services are usually recorded in free text, which makes it difficult to review consultations in a systematic way and share information in a usable form at transfers of care. If information in care records was structured and coded, it would be easier for clinicians to share, making care better and safer for patients. Supported by NHS England and the Royal College of Physicians’ Health Informatics Unit, this project will outline the areas where standards for information exchange are needed, with a view to developing a new standard to meet these needs later in the year. For more information please contact This email address is being protected from spambots. You need JavaScript enabled to view it..

Are you ready for national opt-out in May?

A national data opt-out is being introduced from 25 May 2018, to give patients more choice about how their confidential information is used and shared. The NHS is currently informing patients, public and the workforce about their choices and the benefits that using data for research and planning can bring to heath and care, as well as how the data is protected across the health and care system. 
PRSB understand the importance of being able to use information not only for direct care but also for research, audit and planning purposes, so that care can be improved and made safer for patients. We also recognise the importance of people being able to choose their course of action and having the right information to do this. Care professionals may be asked by patients about the national data opt-out, and NHS Digital will be providing further information to help support them. For more details visit the national opt-out website or subscribe to the newsletter.

Matthew’s story is shared by MPs

This month we released the moving story of Matthew Prosser, who has profound and multiple learning disabilities. The film features Matthew’s parents, Tony and Tricia, talking about the prospect of digital care plans, and how they could transform the future of care for Matthew and others like him. It’s been shared by MP Norman Lamb and Lord James O’Shaughnessy, under-secretary of state at the Department of Health, as well as many others. We’d like to invite you to share the film with your colleagues and stakeholders, which you can find pinned on our Twitter profile. If you have any feedback, or would like to use it as part of a presentation for NHS or care providers, please contact This email address is being protected from spambots. You need JavaScript enabled to view it..

Selecting local health and care record exemplars

The PRSB has been invited to take part in the assessment process for selecting proposals submitted to NHS England for Local Health and Care Record Exemplar status (LHCRE). The aim of the Local Health and Care Record programme is to create joined up medical and care records that help people receive better care and help the NHS and social care improve the quality of care, conduct cutting-edge research and plan services better. The assessment process is underway, with a final set of exemplars to be agreed later this Spring. Following this we’ll be talking to potential sites, who may be interested in working with us to implement standards, in order to find out more about how we can support them moving forward.

PRSB gets active in UK events

We’ve been involved in lots of events in the past month, raising awareness about standards at the TechUK Health and Social Care Council meeting, HSJ Modernising Healthcare Summit and the Royal College of Occupational Therapists’ branch forum.
Our CEO Lorraine Foley delivered a speech at TechUK, while our chair Professor Maureen Baker spoke on a panel at the HSJ summit in Oxfordshire, where delegates discussed the impact of information sharing on patient care, and the problems that professionals can face when standards aren’t in place.
The PRSB also held an interactive workshop at the Royal College of Occupational Therapists this month to raise awareness about the work we are doing to improve integration between different health and care services. The goal of the session was to get more occupational therapists involved in our work through surveys and workshops- as well as sharing the messages of our work with colleagues and stakeholders across the UK.
If you’re a patient or you work in health or care and would like to find out more about getting involved, please contact This email address is being protected from spambots. You need JavaScript enabled to view it..

Upcoming events

Next month the PRSB will be speaking at e-Health Week and Patient Information Forum’s digital health event, to raise awareness about the important work we have been doing to improve the safety and quality of care.  
At e-Health Week, which takes place on the 15th and 16th May at Olympia London, we’ll be exhibiting at stand number 232, while Phil Koczan and Maureen Baker will be taking part in speaking sessions throughout the day. Maureen will also be engaging with patients at a Patient Information Forum on Digital Health Information, drawing upon her experience as a GP and her work with the Professional Record Standards Body to talk about the importance of accurate, timely records being shared between care professionals and with patients.
In June we’ll be heading to Glasgow to exhibit at the NHS Scotland event from 18th- 19th June and the Digital Healthcare Show which is due to take place at ExCeL London on 27th and 28th June.
We’ll be raising awareness at these events about the importance of good information sharing, and the impact it can have on the lives of patients and professionals. If you’re attending any of these events, we’d like to invite you to visit our stand and attend our speaking sessions.

PRSB supporting Digital Health Summer Schools

As part of our new partnership with Digital Health, we are supporting the Digital Health Summer Schools 2018, and will be working with them to develop sessions on standards and patient engagement. The event, which is being held on the 18-20 July at The University of Birmingham, will include a range of varied sessions and you can find out more about the programme here. Three site visits, including two Global Digital Exemplars, will also be available to delegates. Site visits are a popular part of the Summer Schools programme, providing an opportunity to visit leading NHS organisations.

Site visits

University Hospital Birmingham NHS FT (acute GDE) - A chance to get the inside track on key initiatives at a digitally mature hospital trust in the NHS.Birmingham and Solihull Mental Health NHS FT (mental health GDE) - Visit one of the NHS’s digitally advanced mental health providers.Birmingham CCG - The first Summer School CCG site visit will cover steps to integrate care across Birmingham.

Places on the site visits are strictly limited and will be offered on a first come, first served basis. A full programme of Summer Schools sessions will be run for those not attending the site visits. Visit the Digital Health Summer Schools 2018 website for further details.


Care connect standards to help information flows

INTEROPen has been working on new Care Connect standards so that information can flow freely between different clinical systems, to support joined up services across the health and social care sector.

When health and care professionals can access, share and add accurate and up-to-date patient information at the point of care and across different clinical contexts, they are able to make timely and considered decisions about a patient’s immediate or ongoing care, improving overall care. A team of INTEROPen members, including IT suppliers, NHS England and NHS Digital specialists, and PRSB clinical advisers have been working together to develop the national standards and requirements that will ensure computer systems use the same digital language to talk about the conditions, symptoms, medications and other information described in a patient record. A full and detailed guide to Care Connect, entitled ‘What is Care Connect?’, is due to be published by INTEROPen and shared in our newsletter later this spring. To find out more, take a look at the videos from INTEROPen’s Interop Summit, read this Introduction to Care  Connect API, or to take part in a FREE day of learning for clinicians hosted by INTEROPen, Clinicians on FHIR: The Connectathon, on 24 May in London. To join INTEROPen contact This email address is being protected from spambots. You need JavaScript enabled to view it. or complete their online form.

Australia introduces digital child health initiative

Australia’s states and territories have joined forces to create a new digital initiative that will ensure the right child health information can be accessed by care professionals, to improve the health and wellbeing of Australian children. The Australian Digital Health Agency is partnering with eHealth NSW and the Sydney Children’s Hospitals Network (SCHN) to establish the National Children’s Digital Health Collaborative.
SCHN Chief Executive Dr Michael Brydon said that records on a child’s health and development are currently captured in multiple paper and digital systems, meaning they are not always available when they are needed. “The Collaborative is exploring how every child in Australia can have the option of a comprehensive digital health record from the time they are conceived, through those critical first years and adolescence; readily accessible by parents and healthcare providers and ultimately for that individual throughout their life.“This will be of enormous value – not only to healthcare professionals providing care to those children – but to the children themselves as they become young adults and start making decisions about their own health and care,” Dr Brydon said.

Share our updates

We’d like to invite you to share this newsletter with stakeholders and colleagues. If you have been forwarded this newsletter and would like to receive our updates on a regular basis, please contact This email address is being protected from spambots. You need JavaScript enabled to view it. or subscribe here

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